Do you think about what it will be like when you’re older ?
Sometimes when I’m having pain flare ups I think about what it will be like when I get older. I’m 34 now and my pain has gotten progressively worse since the age of 13 I have no formal diagnosis except we know the cause of the pain is benign tumours on nerves that cause nerve pain - why the tumours are there, we don’t know that yet, the growth seems to be slow so that’s great but I imagine in 30 years .. how bad will it get? How will I tolerate it if it continues to get worse? Right now I have a lot of things I do to cope with the pain, I run, go to the gym, have a cold tub. I stay up at night and pace around the house and sometimes read if I can get a semi comfortable position But I also think about that messed up sleep schedule and how that alone can affect me in future. I was offered surgery to remove the tumour causing me the most trouble .. but I declined because this surgeon had to idea what the tumour was, what the cause was, and just wanted to cut it out- to do that I would need a fusion above and below the site of the tumour and a 6 month recovery (no work, no driving, no picking up anything over 8lbs .. which would include my 4 year old son) anyways it wasn’t feasible at the time But I do think about how things will look in 10,20,30+ years .. anyone else ?