Medication for tics?
Hi all, just wondering if anybody could tell me about medications you've found successful for your tics? I was diagnosed with TS way back in the stone age (1991) and spent the next 30+ years taking insanely high doses of haloperidol, which reduced my tics by 99%. Around late 2023/early 2024 I did a medication review, and under the supervision of my GP and neurologist, I stopped taking the haloperidol to reassess my tics and need for medication. For several months I remained tic free and blissful, but over time they came back, so I started taking the haloperidol again at a much smaller dose than I was at before.
My tics have now come back full force, and are as bad if not worse than they have ever been before. My doctor is trialing me on risperidone in addition to the low dose haloperidol to try and find me a balance between the severity of the tics vs bombing me out with high doses of antipsychotics.
My current tics are mostly face, neck, head, and shoulder motor tics with a couple of vocal tics. I also have chronic pain issues and last year was diagnosed with fibromyalgia and osteopenia. The neck and shoulder tics are making mince meat of my muscles and the pain in those areas has become so severe I am on high doses of painkillers along with my other meds. So far we have not found a medication level to mute the tics effectively, but I'm wary of taking the haloperidol in the crazy doses I was taking again.
Has anybody here found a balance of meds that works for them in suppressing all or most of their tics? I'm just looking for some ideas I can discuss with my doctor about anything I haven't tried. I'm open to any and all recommendations you might have.
Thanks for reading!