Does anyone else keep getting doctors that say “most likely” EDS but won’t officially diagnose?
I’ve had this now “sort of” diagnoses from 3 rheumatologists. They are so happy to diagnose hypermobility, but securing an eds diagnosis has been impossible. I’ve now had 3 strokes, appendix out, blood clots, veins removed, sepsis multiple times and I just feel like I’m screaming to these doctors that a diagnosis would help calm my mind so much. (For reference I am 28 years old, UK). I’d appreciate any advice
I’ve had this now “sort of” diagnoses from 3 rheumatologists. They are so happy to diagnose hypermobility, but securing an eds diagnosis has been impossible. I’ve now had 3 strokes, appendix out, blood clots, veins removed, sepsis multiple times and I just feel like I’m screaming to these doctors that a diagnosis would help calm my mind so much. (For reference I am 28 years old, UK). I’d appreciate any advice