Severe neuropathy/ POTS/ ME/ CCI need help please
A community for individuals suffering from the effects of COVID-19 longer than the estimated 4 weeks, also known as PACS, PASC, and Long Covid.
COVID triggered small and large fibre neuropathy need help
This Long COVID support group is sponsored by COVID Care Group, LLC, connecting the dots of long COVID through education, research, & resources for recovery and symptom management. Our clinical team provides FREE educational information to help you help yourself and seeks out valid recovery tools to help with symptom management. Visit us at https://www.covidcaregroup.org for more information. All sales proceeds support our community outreach programs. Keep moving - Keep Breathing!
Concerned about biologics for autoimmune arthritis with me/cfs
For research, treatments, and personal stories regarding Chronic Fatigue Syndrome (CFS)/Myalgic Encephalomyelitis (ME). ME/CFS is a multi-systemic neurological disease, distinct from chronic fatigue as a symptom. For more information, please see our FAQ.
Renting/ house sharing when immunocompromised
For research, treatments, and personal stories regarding Chronic Fatigue Syndrome (CFS)/Myalgic Encephalomyelitis (ME). ME/CFS is a multi-systemic neurological disease, distinct from chronic fatigue as a symptom. For more information, please see our FAQ.
Post COVID neuropathy (SFN/LFN/ POTS etc)
A subreddit for those living with neuropathy.
Has anyone accessed Ivig in Australia? 🇦🇺
A subreddit for those living with neuropathy.
Has anyone gotten IVIG in Australia? 🇦🇺
A subreddit for those living with neuropathy.
Does anyone have inflammed joints on mri/ct
For research, treatments, and personal stories regarding Chronic Fatigue Syndrome (CFS)/Myalgic Encephalomyelitis (ME). ME/CFS is a multi-systemic neurological disease, distinct from chronic fatigue as a symptom. For more information, please see our FAQ.
White spots on brain
For research, treatments, and personal stories regarding Chronic Fatigue Syndrome (CFS)/Myalgic Encephalomyelitis (ME). ME/CFS is a multi-systemic neurological disease, distinct from chronic fatigue as a symptom. For more information, please see our FAQ.
White spots on brain?
Postural Orthostatic Tachycardia Syndrome (POTS) is a form of dysautonomia that is estimated to impact between 1,000,000 and 3,000,000 Americans, and millions more around the world. POTS is a form of orthostatic intolerance that is associated with the presence of excessive tachycardia and many other symptoms upon standing.
Has anyone got CCI - worried how it’s effecting me ME/CFS
For research, treatments, and personal stories regarding Chronic Fatigue Syndrome (CFS)/Myalgic Encephalomyelitis (ME). ME/CFS is a multi-systemic neurological disease, distinct from chronic fatigue as a symptom. For more information, please see our FAQ.
Small fibre neuropathy help
Postural Orthostatic Tachycardia Syndrome (POTS) is a form of dysautonomia that is estimated to impact between 1,000,000 and 3,000,000 Americans, and millions more around the world. POTS is a form of orthostatic intolerance that is associated with the presence of excessive tachycardia and many other symptoms upon standing.
Started metformin - severe burning in legs
For research, treatments, and personal stories regarding Chronic Fatigue Syndrome (CFS)/Myalgic Encephalomyelitis (ME). ME/CFS is a multi-systemic neurological disease, distinct from chronic fatigue as a symptom. For more information, please see our FAQ.
Burning legs
For research, treatments, and personal stories regarding Chronic Fatigue Syndrome (CFS)/Myalgic Encephalomyelitis (ME). ME/CFS is a multi-systemic neurological disease, distinct from chronic fatigue as a symptom. For more information, please see our FAQ.
Binge eating
For research, treatments, and personal stories regarding Chronic Fatigue Syndrome (CFS)/Myalgic Encephalomyelitis (ME). ME/CFS is a multi-systemic neurological disease, distinct from chronic fatigue as a symptom. For more information, please see our FAQ.
Recommendations for at home devices
A community of people using HBOT to improve their lives; from ameliorating disease, increasing longevity, and feeling great everyday!
Cervical collar for cci??
Ehlers Danlos Syndrome (EDS) is a underdiagnosed connective tissue disorder characterized by a genetic fault in collagen. It manifests as hypermobile joints and affects every organ system because we’re all made of connective tissue! We welcome all EDS subtypes, hypermobility spectrum disorder, Loeys Dietz, unnamed genetic disorders that present like EDS, self-diagnosed & suspected zebras. || || || Crowdsourced medical care saves lives. We welcome medical advice!
Has Ginny become the ultimate mean girl? Also poor max !!!!!!!
A subreddit for the Netflix series, Ginny and Georgia
Anyone have low CH50 levels? I did a basic complement system check and this came up ??
For research, treatments, and personal stories regarding Chronic Fatigue Syndrome (CFS)/Myalgic Encephalomyelitis (ME). ME/CFS is a multi-systemic neurological disease, distinct from chronic fatigue as a symptom. For more information, please see our FAQ.
POTS, IST, severe ME/CFS have tried everything and just keep getting worse
Postural Orthostatic Tachycardia Syndrome (POTS) is a form of dysautonomia that is estimated to impact between 1,000,000 and 3,000,000 Americans, and millions more around the world. POTS is a form of orthostatic intolerance that is associated with the presence of excessive tachycardia and many other symptoms upon standing.
Feeling stagnant, loosing connections, want to be making experiences & connections ?!?!?
For research, treatments, and personal stories regarding Chronic Fatigue Syndrome (CFS)/Myalgic Encephalomyelitis (ME). ME/CFS is a multi-systemic neurological disease, distinct from chronic fatigue as a symptom. For more information, please see our FAQ.
Has anyone tried percutaneous electrical nerve stimulation (PENS) for pots/dysautonomia
Dysautonomia is an umbrella term for conditions in which the autonomic nervous system malfunctions.
Post SVT ablation surgery IST
Atrial fibrillation (AF or afib) is the most common irregular heartbeat and is characterized by heart palpitations, dizziness, and shortness of breath. This progressive and debilitating disease can lead to stroke, heart failure, and Alzheimer's disease, and can double your risk of death. Afib takes a physical toll, an emotional toll, and a financial toll on those who are living with it—not just the patient, but the family, too.
Post SVT ablation IST
Dysautonomia is an umbrella term for conditions in which the autonomic nervous system malfunctions.
Large fibre neuropathy
Postural Orthostatic Tachycardia Syndrome (POTS) is a form of dysautonomia that is estimated to impact between 1,000,000 and 3,000,000 Americans, and millions more around the world. POTS is a form of orthostatic intolerance that is associated with the presence of excessive tachycardia and many other symptoms upon standing.
